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Good to know, Emma, thanks. I think I might ask for a short-acting one for just in…"
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What is Eagle Syndrome?
Eagle Syndrome is a rare condition where an elongated temporal styloid process (more than 30mm) is in conflict with the adjacent anatomical structures.
Forum
Sort of Off Topic: How much can a person take? (Whining session-join in!)
Started by eagleheart in General. Last reply by eagleheart 5 hours ago. 22 Replies 2 Likes
Warning: Depressing Post (Possibly melodramatic- we'll see tomorrow)I feel like I'm at my wits end. I had a car accident 2 years and 2 months ago, and I've been in physical agony ever since. I have…Continue
Show Contact Info For May 14th
Started by eagleheart in General. Last reply by eagleheart 5 hours ago. 8 Replies 4 Likes
For the Determined Dozen (love that name!) and everyone else who would like to help spread the word about Eagle Syndrome, I'm going to paste the contact links for the shows below. Please fill out…Continue
What type of music comforts you?
Started by Armando Abrero in General. Last reply by BigsBug 6 hours ago. 2 Replies 0 Likes
Of course, there is no right or wrong answer. What type, brand, era, genre of music do you listen to when you're…Continue
Losing hope; Has anyone been told after getting ES diagnosis that if doctor can't feel styloids, can't be ES?
Started by eaglebaby in General. Last reply by BigsBug 14 hours ago. 15 Replies 0 Likes
I am losing hope and very discouraged from ENT doctor I saw today Dr. Weismann at UCSD. Because he couldn't feel my styloids inside my mouth so he discounted my ES diagnosis. I renamed him the…Continue
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Help spread the word about our newest communities by sharing on your Facebook wall: Acute Disseminated Encephalomyelitis, ADD, Amyloidosis, Disabilities, Ehlers-Danlos Syndrome, Fabry, Guillain-Barre Syndrome, Lyme Disease, Myositis, Narcolepsy, Nephrotic Syndrome, Sjogren's Syndrome, Traumatic Brain Injury, Von Willebrand's Disease.
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eagleheart replied to eagleheart's discussion Sort of Off Topic: How much can a person take? (Whining session-join in!)eagleheart replied to eagleheart's discussion Show Contact Info For May 14th"Okay, I'm just bumping this show submission info so that everyone will have it for our May…"
"I hope you sent one to get them ready for the 28th ;-). I am having difficulty with the Dr.…"
"I am very eclectic in my music. Pop, Rock, R&B, Blues, country, some rap, Christian,…"
Crystal posted a status"Just wanted to thank everyone,
I've got Orthopaedic Spinal Surgery scheduled on my neck June 6, and to a C-spine fusion from C-4- 7!"
purple girl posted a status"countdown to see yet another dr in 6 days time i dont care i have to drive an hour away hope to be sent to see an ent"
Top Content
| 1 |
Join Us To Expose Eagle Syndrome!Posted by eagleheart on April 27, 2013 |
| 2 |
Sort of Off Topic: How much can a person take? (Whining session-join in!)Posted by eagleheart on May 12, 2013 |
| 3 |
Surgery with Dr Cognetti yesterday.Posted by Dawn on April 27, 2013 |
| 4 |
Do i have eagle syndrome?Posted by KenD on May 12, 2013 |
| 5 |
One month post surgeryPosted by tiki on May 8, 2013 |
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"Hi. Thanks for the welcome. :-)"
“Hi. Thanks for the welcome. :-)”- a member from Eagle Syndrome - Online Support Group
"Thanks for the welcome. After several episodes of being left feeling discounted by a medical..."
“Thanks for the welcome. After several episodes of being left feeling discounted by a medical community that seems loathe to risk looking over the horizon, my wife & I find it refreshing to find a place where we feel welcome. We’ve been in despair, but here perhaps is hope!”- a member from Eagle Syndrome - Online Support Group
Eagle Syndrome - Online Support Group
New member says:
“Hi, and thanks for the warm welcome. I am so pleased to have found this site, as my diagnosis is so new, and nobody here seems to know what it is or how to treat it. I live in South Africa, and have seen 3 ENT specialists who have no clue. The one who diagnosed it, is only now studying it, and he has referred me to another ENT, who says he may be able to help. My appointment is for Friday. I am trying to find out what meds dull this horrific pain? It never subsides, as I am sure you know. Hope you are feeling good and thanks again for the welcome.
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Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
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Blog Posts
Pressure in my throat
Posted by ringblomman on May 16, 2013 at 8:28am 0 Comments 0 Likes
I have such a pressure in my throat from the styloid. I feel that I can't take this anymore. It is only a tiny skinflap between the bone ande the inside of my throat...very thin - about 1mm!!! .The styloid is actually precisely under the skinn…
Continue
Extend the Eagle Syndrome letter marathon to May 28th
Posted by viperbone on May 14, 2013 at 11:41am 1 Comment 1 Like
From what I have read in our discussions, it seems that the Eagle's letter marathon will now be May 28th. This is due to conflicts with health issues and doctor appointments and the many new additional participants that need more time to put…
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