Member Resources

The Disability Digest
Patient Power: original content and information to help empower patients
Livestrong.org (1-855-220-7777) Want to talk to someone about your situation? LIVESTRONG is here to help. We provide free, confidential, one-on-one support to anyone affected by cancer— whether you have cancer or are a loved one, friend, health care professional or caregiver of someone diagnosed.
Friends of Treasure: is a 501(c)(3) Non-Profit Organization that provides financial assistance to children and their families suffering from rare diseases.
Pre-Existing Condition Insurance Plan:The Pre-Existing Condition Insurance Plan makes health insurance available to people who have had a problem getting insurance due to a pre-existing condition.

 

Resource Guide of the American Chronic Pain Association -- information on treatments and management of chronic pain.  (linked from Pain-Topics.org)














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Blog Posts

Pressure in my throat

Posted by ringblomman on May 16, 2013 at 8:28am 0 Comments

I have such a pressure in my throat from the styloid. I feel that I can't take this anymore. It is only a tiny skinflap between  the bone ande the inside of my throat...very thin - about 1mm!!! .The styloid is actually precisely under the skinn…

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Extend the Eagle Syndrome letter marathon to May 28th

Posted by viperbone on May 14, 2013 at 11:41am 1 Comment

From what I have read in our discussions, it seems that the Eagle's letter marathon will now be May 28th.  This is due to conflicts with health issues and doctor appointments and the many new additional participants that need more time to put…

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