Hi! I don’t think I did a formal intro but wanted to post my updates after surgery to help others.
Last week, I had a right styloidectomy (jugular compression) and removal of 2 calcified ligaments with Dr. Hepworth and Dr. Annest in Denver. I have pots, Eds, mcas, and 3 autoimmune diseases. Surgery went really well. I was most nervous about my mcas and my autoimmune diseases flaring. They both acted up after surgery but I had plenty of extra meds and steroids on board. I went home the same day and only needed small doses of strong pain meds for 2 days.
Today is 5 days post-op. I am sleeping well and haven’t had pain meds since day 2 post op. I am on increased steroids because of other health conditions but have been slowly reducing those each day and should be back to my normal daily dose by the weekend (fingers crossed).
My neck and jaw are a bit sore and achy but not bad. I had to ditch my giant wedge pillow last night after using it the past 4 nights (hated sleeping so upright) and used some extra soft pillows to prop myself up. I woke up laying on the side of my surgery. It was sore from sleeping on it but not bad at all and after a shower, it was fine.
I am lower energy yesterday and today and feel my body is very much directing most of my energy into healing. I know it’s early but it does seem that my POTS is better. I took a shower this morning and didn’t need to lay down after which is definitely different and it seems my brain is less foggy.
I talked on the phone for almost an hour this morning and my jaw is so tired and my throat is sore after that. And it made me very physically tired too.
I can eat almost normally. I even ate some crunchy tortilla chips today.
My incision is scary looking because of how easily I bruise. My follow up with Dr. Hepworth is in 3 days.