EXCELLENT POST!!! I LOVE IT - Eagle’s Trojan. What a great name!!
I also love the descriptions of all the types of tinnitus & ear/hearing sensitivities you have as they are a great description of what I’ve been through since 2015. I blamed mine on ES, & initially, at least some of the “tinnitus symphony” may have been related, but ultimately, I ended up w/ Meniere’s Disease from a head injury sustained in a cycling accident between my ES surgeries. Meniere’s made my tinnitus go wild & that’s when I began to experience everything you’ve described. I also had surgery for Meniere’s to keep me from totally losing the hearing in my left ear. It’s helped moderately. My hearing & tinnitus are still a roller coaster ride being set off by who knows what & then miraculously resolving only to repeat the process at some future time. Vertigo also comes & goes, but I’m very blessed to get what I call “high functioning vertigo” as it doesn’t lay me out flat. I have found when I get a more severe case that lying down actually makes me nauseous, but if I stay up & keep moving, even if I’m walking like I’m drunk, the nausea stays away. Curious.
I’m totally on your page as far as wishing any doctor who doesn’t know about ES or limits the symptoms to only certain ones could have a panel discussion w/ a group of us who’ve had this syndrome. There are just so many crazy symptoms.
BTW, your vocal challenges are coming from irritation to your vagus nerve - an oh so common issue w/ ES. The vagus nerve has control over many of our body functions & is our largest cranial nerve. It affects functions ranging from skull base to groin & many locations in between. The good news is, once the styloid(s) are removed & the vagus nerve recovers, the symptoms it caused often go away or are at least minimized.
Thanks again for your bit of humor. I needed a good chuckle today.