Hi @kittchenita I’m so sorry you’re going through hassles with insurance and this other doctor that is wasting your time. I am also in Denver and also on an ACA plan; it has been a real hassle trying to deal with this extremely painful issue and navigate my crappy insurance. I’m trying to get on my partner’s plan now to make things easier.
I am seeing Dr. Hepworth for very similar issues and I can assure you he is extremely caring and gifted at what he does. I am not sure I’ve ever seen a specialist with such a great bedside manner. He has told me repeatedly “I believe you,” that there is a scientific reason for my problems, it’s not “in my head” or “panic attacks” as I was previously diagnosed. He is very thorough. I still do not have a firm diagnosis as he is checking all of the peripheral things, but he has brought up Eagle syndrome as a possibility. He also has sent me to other doctors for various tests, mainly a CT scan, a vascular ultrasound, examination of my eyes for papilledema (optic nerve swelling). Last time I saw him he referred me for a cerebral angiogram. He said “look me in the eye: this is not a transition of care.” That meant a lot to me that he is not giving up on my case. I am supposed to see him roughly a week or two after this procedure but am still waiting to schedule. His scheduling people are not the greatest (they are gatekeepers, like most scheduling staff) but his nurses and PA are very professional and kind. I am confident he will tell you within the first appointment if this is a potential issue if he can see your CT and he will not waste your time! If you have any questions please reach out and message me. There are a few others here who see him and our journeys have been very very similar. Hang in there!