Thank you everyone for your responses and confirming what I knew!
I was just thrown off course when only a few minutes into the consult that I had waited for for almost a year due to covid I felt shut down because I said I felt pain radiating into my ear (among other symptoms). Where do you from there?
The whole reason of seeing this Dr is because he has dealt with ES. I could have accepted his suggestion of an alternative diagnosis but lost confidence when he said that ES ‘never’ causes ear pain. This was after he told me initially over the phone before seeing him my scans showed my styloids were long and it was likely I had ES but he wanted to confirm this when he saw me. Then when he did, he did not actually examine me.
Also I had a look today at the symptoms described by another patient of his who he performed ES surgery and how I came to find this specialist and he described having pressure in his ear! So how does that work?
What I don’t have is difficulty swallowing and constant throat pain. The other patient noted he had throat pain, as well as ear and jaw symptoms. Maybe this is why this dr may have felt it is not ES. I do have throat pain at times like when you have cold but this comes and goes and is not constant like my jaw/neck pain.
Who knows, but happy to know that my concern about this outright dismissal of ear pain as an ES symptom is not right!
I will keep you posted. Hard not to be put off when something like this happens and can be exhausting.