I need some ES detectives to help me out!
Long story short…
I have ES: diagnosed by dentist, oral surgeon, and ent. This includes panoramic xray and a 3D CT that showed elongated bilateral styloid process. Going to attach pictures if I can?
I found an ent/head and neck surgeon I trusted and had surgery on 8/20. My surgery report says the left styloid was removed, I will post pics of that description too (without identifying info). Surgery was intra oral, left tonsil removed. Pathology even states styloid in report.
I never felt better after surgery. I feel worse. While there is less “restriction”, I now feel a worse stabbing pain the back of my throat, but lower near the thyroid.
Now here is where it gets weird. My doctor, at follow up visits, states he can do another surgery on my hyoid. It is almost as if styloid and hyoid are interchangeable words and body parts to him. He said when he removed the part of the horn of my hyoid it was very calcified.
I am so confused. I went in thinking my left Styloid was going to be removed, all reports say it was, BUT then he points to my hyoid now and has called it my hyoid and says I need a second surgery on my hyoid to remove the feeling of a foreign object in my throat. I have a pic of what he removed. It indeed looks like a piece of my hyoid.
Second surgery is scheduled for 11/19 and y’all I’m scared to go under with what is now an external surgery on my hyoid Or styloid Or who knows ?!
I am a Premed student. I know how to advocate for myself. I have asked all the right questions but feel dismissed and so confused. So I requested/had a Ct scan this week. He ordered a neck soft tissue with contrast. It’s not as good as the 3D one my oral surgeon did. But can anyone let me know if their CT looked similar. Anyone with hyoid surgery feel this same pain or get worse ? I can’t identify the styloid in this scan. And I’m
Thinking my hyoid is out of place? I’ve never felt so inept at my own health care. Can you identify where I had surgery ?
I don’t have a radiology report yet. And likely won’t until I go in for surgery. But I did ask for the ent to call before, but he probably won’t. What would you do?
Images to follow