I will start out by saying that my heart goes out to all of those dealing with this horrible virus. I pray for love ones lost, those recovering and to the brave people on the front lines.
The testing in my doctor’s office are reserved for essential workers so I have not been tested but he believes that I have “caught the damn virus running through NYC like wildfire.” For me it started with a fever and exhaustion. I then felt better for 5 days or so then I had a relapse. I am now close to 30 days on/off with the last week feeling incredible muscle weakness. I feel very fortunate not to have respiratory issues but I am left with neurological issues that feel similar to ES symptoms: tightness in my neck, chest, arms, etc. The nerve pain and tingling at the incisions is back. My arms feel like I have done 20 reps with large weights and cant lift them. I have the pounding in my head when I stand up, dizziness and headaches - all of which I had before my surgeries that went away. Like my pre-surgery ES symptoms I am better in the morning but now the need to be horizontal in the afternoon is overwhelming. Sleeping is an issue too - confirmed by my doctor that all of this is neurologically related. I am the only ES patient he has but he sees similar issues related to the virus in many of his patients.
I am writing here not as a poor me but to tell all about the symptoms not discussed. He is certain that I will recover but it will take time. Having been through ES with successful surgeries I am hopeful and at the same time I am worried - we all know the anxiety that nerve issues can cause.
I pray you all stay safe.