I had my ENT appointment today. They aren’t willing to state my various symptoms, daily headache/migraine, pain/difficulty on turning head and swallowing, dizziness/passing out, fast/slow heart rate etc is down to my now definitely confirmed Eagle Syndrome/Elongated Temporal Styloid bone/calcified styloid process ligaments. They called in a consultant who has apparently performed operations to remove these back in the 90s, who stated that the operations are not always successful, that the scar tissue can cause symptoms of their own and that they were not willing to operate on me.
They are referring me to neurology for more tests and pain clinic for more patronising.
So here I am, with my extra bits, on all these meds, still trying to get someone to listen. I now have to find £200 from my money tree to see a consultant here in the UK who does think that all these symptoms are caused by my extra bits.
I am angry and pretty upset.
This is the only photo I could quickly take whilst the room was empty. I have requested the file of my CT scan from the right department and expect to receive that in the next decade.
If I sound bitter it’s because I am. I have been trying to get someone to listen for 14 years since my tonsillectomy. I’ve been treated like a crazy woman for most of that time. My pain is real and I have had enough.
If there is anyone who knows ANYONE who can help me please please please let me know.