My surgeon thinks the hit to my adrenals and ANS is from the prolonged and severe vagus nerve compression thus having the styloid removed should help but nerves can take a loooong time to heal.
It is so fascinating to me to be able to now, in hindsight, recognise the mechanical restriction from the styloid butting up against the C1 tubercle. It is something I have had worked on with PT over the years but only had temporary improvement and never seemed to truly resolve…here is the “ah ha” moment. No chance any amount of joint manipulation would solve that and to be honest I backed off because it always resulted in a headache…oh the lessons we have to learn
Now with the right styloid removed I can feel the normal motion at C1 there…which is highlighting the restricted C1 motion of remaining left side - of course! So yes, I agree the remaining styloid that is now without it’s sister is talking, only for me it is not “pain” but joint stiffness and muscular responsive tightness - and any other related nerve/IJV compression complications.
My search for the CSF leak continues, more testing next week. It is just another piece of the very complicated puzzle. CSF leaks can be very hard to identify, in the spine or the skullbase. It is a fluid and ever changing system and our bodies can heal and then spring a leak again, the ultimate hunt of finding a needle in a haystack. The good news is i can now readily identify when it is happening and not jump down the rabbit hole to chase some other mysterious neurological disease.
It will all unfold in time, I trust I am where I am meant to be. Just have to hold on in the mean time and … just breathe