Good Morning All,
I am fairly new here and posted a few months ago. Lately, I’ve been in a great deal of pain. like a fork is stabbing my left tonsil area. I’m unable to turn my head to the right without experiencing a lot of discomfort. Swallowing is growing more difficult as well. I’m constantly dizzy and my head aches. My tongue feels like it’s on fire!
These are all familiar symptoms for most members of this support group, I’m sure. As I mentioned in a previous post, I was diagnosed many years ago and had a “partial” bilateral styloidectomy. Over the years, the pain has only gotten worse and has now become nearly intolerable, even with pain meds. I’m scheduled to see a local ENT this Thursday and I’m bringing all my old medical records and CT scan from my original diagnosis. I am certain I’m headed for another surgery!
Dr. Samji would be my first choice as a potential surgeon. I love that he also treats singers (I have a background in vocal music) and would be overjoyed to regain my singing voice. Of course, I would have to fly across the country for the surgery, so I’m considering doctors in MA as well (I live in Maine).
Oh, I almost forgot! Have any of you experienced tingling and/or white fingers and hands from Eagle’s Syndrome? I’m beginning to think there may be some compression of the carotid arteries as well.
At this point, I would appreciate any advice or suggestions to help with the pain until I can see a surgeon. Are there meds that work for you better than others? I’ve also been meditating and that seems to help a bit.
Thank you all so much! I hope all of you are hanging in there during there challenging times:)