Two weeks ago my dentist diagnosed me with ES after looking at my panoramic x rays…I spoke with my primary care doc, and he gave me a referral for an ENT. I regret not thinking to have my x rays sent to her office, but having her walk in and have the first thing she says is “there’s no way you have Eagle Syndrome and dentists don’t know what they’re talking about”… and that headaches aren’t a symptom of ES, really threw me for a loop.
I’m only 29, but have a long history of ear infections (adenoids removed and tubes in my ears 3 times). I’ve struggled with headaches, neck pain and tension, tinnitus, “throat fullness”, among other symptoms. She put her finger in my throat to see if she could feel my styloid, and while she said she was unable to, I am left with pain radiating down my neck. I’m not stranger to having to self advocate to doctors that won’t listen (Lyme disease and PMDD), but the overwhelming distress of being dismissed and not listened to by doctors never gets any easier.
I am having my x rays from the dentist sent to my primary care doc, and hopefully we can find someone to hear me out–I live in Durham NC and am right by both UNC and Duke, and from what I’ve read on this site, many folks have had great success with several doctors between the two.