I have had a headache in my right temple for 6 years. I have been to 4 primary care doctors, 2 neurologists, a TMJ expert, 2 dentists and have had CT scans, physical therapy, dry needling and most recently an MRI. After the visit to the TMJ
expert, my current primary care physician received a letter suggesting a diagnosis of Eagles Syndrome. (When I called the TMJ doctor to ask about Eagles Syndrome and what she saw in my exam to suggest it, the office staff denied (?!) having offering that as a diagnosis. I have a copy of the letter dictated by the doctor.
I have an initial consultation with Dr. Luke Phillippson at Butler University in Muncie, IN scheduled for 9/21. I have been reading stories here in Living with Eagle, for several months. What has really struck me is that so many stories do not include reports of “complete” relief from symptoms after surgery. Am I wrong or missing something? I am very skeptical about Eagles Syndrome as a diagnosis for myself since I have no other symptoms besides a chronic headache. I really feel for the countless people who have this awful stuff and the journey you have had to take to get treatment but I really cannot mix in another “possible” health problem with surgery as the only treatment. I already have my plate full. If I knew that treatment meant “cure” maybe it would be worth the risk. Is anyone here completely free of symptoms?