I haven’t been on this site for over a year but I had my first (left) styloidectomy in Dec. 2019, with Dr. Samji. He reported complete styloid removal, including some surrounding skull base, as well as removal of both of the calcified corresponding ligaments. I was then scheduled for my right side styloidectomy o
in late March, 2020, but it was canceled due to Covid. This past year has been horrific with my symptoms, both from nerve compression but also significant jugular compression and the whole host of nightmare symptoms that accompany both of these. I have been able to get fully vaccinated and have rescheduled my right styloidectomy for mid-May. However, I recently had new CT imaging and was shocked to see that I still have bilateral elongated styloid bones!
My issue is with what my operative report and pathology report say vs. what my imaging shows post-operatively…both can’t be true. My styloid bone on my left side IS shorter now, but the shape of the smaller styloid is exactly as it was before, so there is no way this is regrowth. This is a shortened styloid bone.
I don’t know how to reconcile this lack of accurate reporting with trusting Dr. Samji again. I trust he has extensive surgical experience with ES, which is why I have traveled to him for my surgical care in the past, but I expect to be told the truth about what is done inside my body when I’m unconscious. His medical assistant has come back with “unfortunatly, we have now seen a couple of cases of calcification of scar tissue that can look just like styloid.” There is NO way that is what I am seeing.
Anyone have advice or a way to reassure me that getting on a plane in one week to go back to him is what I should do? The thought of trying to get in with another experienced surgeon and waiting much longer for relief on my right side is overwhelming. I am barely functioning at this point.