I keep debating if this site will help bring me comfort or worry! I’ve been a wreck and feeling anxious.
I have had varying symptoms since the end of November. It began with a clicking in my throat which led me to my PCP. She had explained that I likely pulled a muscle and to give it 3 weeks. IF not, and I still felt discomfort she wanted me to see an ENT.
I had a flare-up on December 26 that led to difficulty swallowing, throat fullness, and eventually, my ears to pop, and crackle. The ER admitted me and tried to distinguish between an ENT issue or a GI issue. They did a few tests in the hospital: barium swallow, laryngoscopy, and neck CT scan. At that time, all appeared normal. Lab work was also showing normal/stable.
It’s been a rollercoaster of tests/symptoms since then with another flare-up on 1/21 where I could feel my throat uncomfortable when drinking HOT drinks around the middle of January.
During all of this discomfort, I’ve never experienced pain but wildly uncomfortable from my throat area.
My PCP ordered an MRI a few weeks ago that was compared to my December CT and it was noted that Eagle Syndrome with ossification/calcified stylohyoid ligament.
At that time, I decided to switch my doctors to Northwestern in Chicago.
I’ve now seen 3 ENTs and set to see my fourth one at Northwestern. I did see Dr. Bove at Northwestern who suggested another CT to get exact measurements of ligaments. The results were turned around within 1 day and my right styloid was is measuring 3.8cm and my right 3.1cm.
At that time, they walked me through the process and recommend another ENT to meet with as Dr. Bove is not performing surgeries at this time. I am set to meet with her March 9th.
My biggest concern is swallowing discomfort. It feels like I have rocks in my throat under the chin/upper throat area when swallowing saliva or when placing fingers on the right side of the throat I can feel lump. When I swallow it feels like a cobblestone sidewalk. Middle of throat and middle of the throat is most bothersome. Eating and drinking are not seamless swallow and I’ve lost approx 15lbs since this has begun. My ears also crackle with each swallow. I also have larger tonsils but never an infection.
Everything has that could potentially be has been ruled out but I worry about what next steps could be. Also, my symptoms don’t appear to be “typical” and it’s been explained that I fall into this grey area since imaging shows elongated styloid but I don’t have the pain associated that most people experience.
The tests I’ve had:
Larynogscopy (3x) with each different ENT
2-CT scans w/o contrast
Scheduled motility study
What they thought I’ve had:
Globus sensation (did experience this back in December with flare up)
Anyone share these symptoms or feelings? Thanks!