Posting images on here is as easy as dragging & dropping them into the text box where you write your post. If you want to do it the more “official” way, you can click on the underlined up arrow in the little menu at the top of the text box. That takes you to a link where you can upload the image from your computer to your forum post. Currently, using the up arrow method isn’t working for me so I drag & drop my pics at this point.
I’m so sorry for the severity of your situation & for all you’ve been through with COVID, the CSF leak, jugular compression, CCI, etc. With that mix, your biggest challenge will be where to start i.e. which thing do you work on first? That is a good question to ask Dr. Hui.
I think Jules might have mentioned Dr. Hepworth in Denver to you. He is very experienced w/ vascular ES & is a meticulous surgeon. He does work together w/ a vascular surgeon &/or neurologist depending on the situation. I know you said you’re too sick to travel, but if your symptoms stabilize some, perhaps seeing him would be an option. It’s tough for you that sleeping comfortably is so hard. Not being able to sleep well also adds to the symptoms, brain fog & stress.
I’m glad you were able to remember that Plavix helped you when you were in the hospital. Just being able to clear away some of the mental fog would help you feel more on top of all this. I hope your able to get an Rx & try again w/ the blood thinner.
Sending you a gentle hug & lots of hope for making some solid progress toward recovery in the coming weeks.