Hi everyone. Haven’t been on here for a while and missed you.
I am now awaiting a catheter angiogram with Dr Higgins. The wait is going to be a very long one thou
I just needed to vent as my symptoms are really baffling me and I just hope I’m not going down the wrong road with all this es stuff and jugular compression.
My worst worst worst symptoms by far are that behind my eyes there is this intense sucking/pulling. Also in my neck and head I feel so physically drained and like gravity is pulling me down. The presyncope is getting worse and the derealisation. I just want to release this feeling so bad. I also leak clear fluid from my nose most days.
I can deal with my ear fullness and whooshing tinnitus etc but these symptoms are awful.
My head had more exploding in the first year but now it’s definitely imploding and sucking numbness.
Anyone on here have a secondary csf leak caused by all of this, that feels more like they are low pressure as opposed to intracranial hypertension?
Thanks for listening