I have never posted anything on here before, usually I read and like the feeling of knowing I am not alone in this journey.
I decided to post today as I have recently been having a “flare up” of pain and symptoms. I say flare up as I feel I can usually handle the pain pretty well, but it has been extra lately. I recently sent out my records to DR. Cognetti at Jeffereson University and I am hopeful he can shed some light on this.
I have had symptoms for years and been to many doctors and overall they all confirm it is Eagle Syndrome but no one will say that it is 100 % the cause of the pain.
I was told in early 2019 that I had ES. Multiple doctors agreed and the pain would come and go. In late 2019 I “committed” to finding a cure as I felt pretty crappy most days. Since then I went back to the ENT, Neurologists, Oral Surgeon, Yale Head and Neck Surgeons and an Ear Specialist - they all say it is ES but they don’t seem very confident
I also have new symptoms in the last year that I wonder if they are related: I have been to the ER for Trigeminal Neuralgia and had another episode if it recently. I also have Seborrheic Dermatitis on one patch on my head right where the pain from my jaw is. The Derm said it was odd to only have the one patch so bad. Anyone else have the Neuralgia or skin issues? Anyone know how long Dr. Cognetti takes to review and get back to you if he can see you or not?
Thank for letting me chat! I know its a long long process sometimes.
Have a nice weekend all!