I’ve been reading a lot about Eagles Syndrome since my Oral Surgeon pointed out that my styloids we’re showing up on my pano x-rays which may be ES. My chronic pain and healing journey started 3 years when suddenly my ears felt extremely full w/t pressure after my drive descending down the mountains with a severe head cold. Needless to say my ears especially my left was never the same. My ears continued to have trouble equalizing to barometric pressure and felt full, popping, with occasional tinnitus. It was getting worse over time and I saw many Dr.’s to find a solution. So, after seeing 7 General Dr.’s, 3 ENT’s, 2 General Dentist, 2 Oral Surgeon’s, 1 TMJ Specialist, 2 Allergists, 1 Acupuncturist, 2 Chiropractors, Cranial Sacral Therapy, Hypnotherapy, Cryotherapy, and plenty of supps and anti-inflammatory dieting I still could not find relief or a Dr. that knew what was wrong with me. You may think it’s crazy that I’ve done all this for an ear problem but let me tell you it’s really uncomfortable, painful, and I also get severe pressure in my head! My quality of life is WAY down!!! Last October I started getting very achy in the jaws and popping in the joint behind my ear. I could swear it felt like TMJ but I went to the very best TMJ specialist in my city and he ruled it out. “What”! So, then I’m thinking maybe it’s my bite, perhaps it’s changed since I got my braces off 8 years ago. So, I go back to my Orthodontist and she said “nope, your bite is fine but your two top wisdom teeth are erupting”. So, I was thinking “Eureka, that must be it”! So, I go to a Oral Surgeon and tell him my story. He’s skeptical that my wisdom teeth would be causing all my pain but I’m eager for a solution so I had him take them out. Before he did though he pointed out that on my panoramic x-ray he could see my styloids and said typically your not supposed to so it could mean they are calcified and used the word Eagle Syndrome. He seemed so uneducated about it so, I let that go over my head! At that moment I just wanted my wisdom teeth out.
Well, I’m 2 weeks post op from that surgery and to my great disappointment all my original pain is still there and maybe even worse! On my follow up appointment my Oral Surgeon said I should go see some specialist in the big city of SF. Now, I’m extremely concerned. Could this be ES? I don’t have any of the classic symptoms that I’ve been reading about on the web or on this site. For me, my primary symptoms are ear fullness/ poping, facial pain and jaw popping, and severe head pressure at times. (Btw, I had a MRI of my head and it was good…no findings) I feel like nobody in the medical field wants to help me and/or have answers! My orthodontist gave me a referral to get a fancy and very expensive out of pocket 3D image but my Oral Surgeon says save your money and use it towards the specialist in SF. They should have everything there to help diagnose and will be covered under medical insurance. But I’m eager to know sooner cause seeing a specialist could take mths!
So, CT scan or 3D image, what’s better?
I’ve pretty much hit rock bottom and lost all hope! Has anyone experienced anything like this?
Thank you for your feedback and time!!