Hi. I’ve been reading the site and absorbing as much info as I can about ES. I believe I might have it. I’ve been to three ENTs and one gastroenterologist. They all think I’m nuts. I’ve read you guys might be familiar with that?
The worst headache ever started in August of last year. I couldn’t function. I had a hard lump, maybe a centimeter around? On my neck near the Adam’s apple. I went to see my PCP. Didn’t know about ES yet. Told her that for a week, clear fluid leaked out of my left nostril. CFL?!?! She totally dismissed that. She said the lump was a lymph node. She sent me for a thyroid ultrasound. She suggested a biopsy. Test came back, no problem. Blood work was negative. I forwent the biopsy and went to see an ENT. Foreshadowing: first ENT in 2000 performed a septoplasty and did something to widen my sinuses. Second ENT in 2015 told me I needed to have my sinuses laser trimmed to remove the swelling tissue. Neither even really listened to me.
Third ENT says everything looks good. Barium swallow, thinks it’s GERD. Tells me to change my diet. The node my PCP told me was a lymph node was wrong. It is calcified ligament according to the ENT.
The bone protruding out from under my right tonsil near my molars is so sore. The two bone protrusions behind my tonsils are making me gag. Food is still getting stuck. My right tonsil looks huge back there.
I have classic ES symptoms. BUT, I’m most worried by my headaches. They have never gone away. I bend my neck down and it is pounding so hard in my head!! Vascular involvement spooks me something fierce!
So, in the group’s collective wisdom, I pose some questions that I can’t seem to answer. If the styloid process is down under my tonsils, near my molars, what are those hard bony things behind my tonsils? Or, are the styloid processes both behind my tonsils? If so, what’s that pokey, painful bone down in my soft palate?
I studied so much anatomy of the head and I just can’t seem to find a bone that would be behind my soft palate near my molars. I’m long winded (I don’t talk often). Apologies for the rambling. Any advise or comment welcome. Thank you.