My dysautonomia issues have now worsened and I’ve been admitted to London Health Sciences Hospital in London Ontario
Internal medicine, cardio and neuro teams are all working to test and figure it out but I keep mentioning neck pain and eagles finding on a CT report from October and they don’t know what to make of it.
I have major pain and throbbing in both sides of neck when standing and my heart goes up from 60 bpm to 160 in minutes of standing
Now I have issues swallowing which is why I went to ER
My question is and I’ve asked it before, but I’ll ask differently how do I tell three huge teams at a major hospital that I think I need ct with contrast. I had full head and spine MRI this morning with “no findings” but they didn’t know what Eagles syndrome is
My dysautonomia group says it could be connected to Eagles but also be “coat hanger syndrome”
I’m exhausted, dizzy and having severe brain fog from a sleep disorder and now being off my medications
I don’t know how to keep advocating for Eagles and rule out it’s vascular implications without being called a basket case again… ugh. Help?