I’m back with questions.
I went to see an ENT today. He told me he saw one patient when he was a resident so clearly not an expert. He did know that palpating the tonsillar fossa could help with the diagnosis. He didn’t know that injecting the tonsillar fossa with steroid/lidocaine could also give some clues. He offered to inject me on March 18 and now I have to decide if I want someone who has never done so to do the injection. I’m not worried about the injection but I am worried that if he does not know what he is doing, not having any change in my symptoms will lead me no closer to figuring this out.
So I’m thinking of going to see Dr. Cognetti or Samji for an in person consult and I wanted to ask the WA veterans their opinion if they think an in-person consult will be able to give the surgeon more info to make a definitive diagnosis or if I should just have a phone consult.
I have other degenerative issues found on MRI which includes C1-2 degeneration and mild TMJ arthritic changes. Both of these can cause headaches although I find it hard to believe that they would cause a constant 5 year headache … but what do I know.
So, I’m looking for some advice on how to make sure it’s really ES. I have longishs styloid (3.2 and 3.1) with jugular compression (every ENT I have spoken to thinks this is no big deal) and some sort of lump in my throat. Many of you have very long styloid and a severe lump and click so I can see how a clear diagnosis for you make clear cut sense.
Thanks for considering.