Dr Hussein Samji seems to be pretty much the best expert there is on Eagle syndrome at least according to what I have heard on these forums.
I've seen him two times now but have yet to have any surgery. He was certainly very nice and he certainly knew about Eagle Syndrome and he even mentioned this site. He is the only doctor that I know who mentions Eagle Syndrome by name as one of his clinical specialties on his website.
However when I was speaking to him he seemed to show skepticism that vascular Eagles exists as a diagnosis? Is it true that Dr Samji doesn't believe in vascular Eagles?
Not that that would matter if he would do the surgery competently. When I first saw him, he seemed like he really thought I had Eagles and he might do surgery. He then sent me to get new CT scans done.
After that he seemed reluctant. I didn't follow up with him directly, I only spoke on the phone with him as I had already left for home (I live 5 to 6 hours from him).
I followed up several months later and he again seemed skeptical and reluctant to do surgery. I don't know whether it was because I had done surgery before and he was concerned about complications or because I had other diagnoses that had been suggested?
I have looked at those same CT scans and I've had some done since then (I've posted them) and the styloids are at least 2.5 or more centimeters on each side and my stylohyoid ligaments are both significantly calcified at the attachment to the hyoid on both sides (another 2cm of bone on each side).
Maybe what is there still technically qualifies as "normal" according to some textbook but I have a great deal of pain. I can feel a bone in the back of my throat with my tongue. There is something sticking there and I have symptoms of serious nerve and/or vascular compression.
Dr Samji was always very polite those two times I saw him. I didn't really get a clear explanation of why he wouldn't operate. I called the reception desk and they gave me his email address. I have sent him several emails over the last several months and I have never got any response.
I don't know what's going on?! I guess I could continue and try someone else but I know they would have less experience than Dr Samji.
Has he ever told anyone else that he doesn't believe in vascular Eagles? He didn't say that explicitly. He is aware of medical literature that talks about it but he still expressed skepticism.
What do you think? I'm interested in any feedback you could give me about my experience.
I posted my CT scans again just for reference.179-Front1.jpg (280 KB) 180-Front2.jpg (160 KB) 181-Front3.jpg (142 KB)