I saw a previous post regarding this but I wanted to ask if anyone here has actually lived with this without getting surgery for many years? As of right now I have EXTREMELY minimal pain (I probably have more pain in my knee from an old IT band injury randomly than I get from ES). It hurts a bit on certain days when I turn my head and also is much more sensitive during my period (Which I will actually make another post about if no one has because it definitely is something ive noticed).
The pain is EXTREMELY minimal and thats why I took so long to bother to get it looked at because it really wasn’t an issue for me i was more worried it was something like cancer (eek). So when I got the CT scan they told me I had ES. The doctor told me the surgery, if I wasn’t really in pain, would not be worth it at this point…but I don’t know how much he knows about the issue…(he was the one who suggested it before I got diagnosed so I assume he knows quite a bit). I ASSUME it isn’t pressing on my veins because I feel the doctor would have told me about it if it was and suggested I get it removed…I have no lightheadedness or headaches or anything but he said it was 4cm long which apparently is quite long so I have no idea how I am not getting more symptoms?
As many have mentioned on this board it seems to worsen with stress and inflammation (I won’t feel it at all while I am on vacation for example or just having a good time, but then as soon as gradschool starts again…here she comes haha). It flared up around late February when corona virus was just starting to show up in Norway and I was having scans on my right leg for a stress fracture related to overuse in running (I am a huge runner and fitness nut) and that was causing EXTREME distress. : /
I guess my question is, I know this CAN be dangerous but it seems less likely especially if I am not having symptoms and my quality of life is not impacted at all, but the ENT sounded almost TOO non-committal to it and was like “it is more of a bothering thing not a dangerous thing”. OFC I am communicating in English to someone who doesn’t normally speak English so this could also be a factor as well.
I am 28 currently and I would never choose to have the surgery for the “pain” because its so intermittent and mild, the only reason I would choose to do this is if it was going to kill me if I didn’t…(at this point, that ofc can change as I get older).
Opinions : (