Hello, wondering what medications have been most helpful for everyone? Least side effects. I didn’t feel as much of the nerve pain symptoms when I was on cymbalta, but I couldn’t stay on it for other reasons. Worried about fatigue, more vision changes, and weight gain with the other nerve pain meds… but I need something! Bonus if it helps with the severe depression this syndrome brings. It would be nice to have something that helps while waiting to see surgeons
The traditional nerve pain meds - Gabapentin, Neurontin, Amitriptyline - any drugs in those families have helped people on the forum. Your depression could also be coming from vagus nerve irritation. It’s a very busy nerve!! Perhaps getting the pain/other symptoms under control would naturally help your depression. Some people have also added a lower dose antidepressent to their regimen prior to diagnosis & surgery.
I’ve just replied to you on another discussion about treatments before I saw this so won’t repeat it all! The nerve pain medications can be a bit of a juggle- it’s worth trying a different one if you had side effects, you might get lucky! I found Amitriptyline works well for me.
Some doctors offer lidocaine/ steroid injections into the area which can be helpful, although don’t work for everyone & aren’t a permanent solution.