A few of us ES sufferers are meeting in Cardiff this Thursday 7th March 2019. If you would like to join us please let me know!!!
Great that you’re getting together, but a shame there’s so many of you…& ES is supposed to be rare! Have a great time!
HI Jules, In the future do you think there would be interest in a UK wide gathering (meeting up in a central location). Do you know roughly how many ES sufferers live in the UK? (or how many people on this site reside in the UK? ).
We used to be able to search for members from different countries, but I don’t think we can now the site’s changed… not sure how many are from UK & active on here now, but it could be asked as a discussion?