I was recently, this week, diagnosed with ES. I actually had never heard of ES before my doctors appointment. After research on this site and others I am feeling a little overwhelmed with the amount of information out there and not quite sure where me and my symptoms fit in yet.
Since last August I have been having throat pain that felt like a throbbing sore throat that sometimes radiated to my ear but never became more than annoying. A few months later I had a bad cavity taken out on the same side so figured my pain was in relation to that and would clear up in time on its own. It didn’t. Fast forward 7 months later, and several doctors appointments ruling out infection I got referred to an ENT. I figured maybe I had a mild form of heart burn, as I had no other obvious symptoms. When I explained my symptoms my ENT after doing a basic visual exam palpitated the inside of my throat exactly on the spot that feels sore and on my neck/jaw area by my ear (OUCH) was able to feel what she said she believed was inflamed or calcified styloid ligaments. my throat hurt the worst it has yet the rest of the day and night after that.
Here is the strange part that I haven’t been able to find supporting information on - she said I should take antihistamines and that it would come and go in regards to the pain and that it rarely required surgery, she had done one in five years, and that allergies can make it flare up. I currently have no symptoms of allergies. On the one hand from what I’ve been reading this is a rare condition so the fact that she was able to feel it and know what it was so quickly leads me to believe she’s familiar with it - but on the other hand it seems like there should be follow up testing and I don’t really understand how the antihistamine thing would help. Maybe she is trying to rule out concurrent symptoms before doing further testing?
After reading peoples stories, I also realized there are other symptoms that I have been having that I didn’t think were related to my throat at all, such as headaches and chest tightness and mild anxiety and fog brain (which all could also be attributed to the stress of the times we’re living in right now as well as my full-time work and school schedule last year).
Right now my symptoms aren’t so debilitating but not knowing how close my styloid is to my nerves and arteries is kind of freaking me out so I think I am going to request a CT scan next week and just to ask more questions once I’ve had time to digest all this information more. Has anyone been diagnosed without imaging like this before or been prescribed antihistamines or seen improvement in symptoms from taking antihistamines?
Thanks! and thanks for sharing all this information it has been a huge help so far.