Let me start by saying I have not been diagnosed with Eagle Syndrome. I have just been relentlessly searching for anything that could provide answers after years of suffering and I think I may have found it.
I have had dysautonomia (specifically POTS) for almost a decade. In addition to POTS I have had intermittent tingling and numbness sensations in the right side of my face, ear ringing, random sharp jaw pain on that side, cluster type headaches, blurry vision etc. I have POTS every day, but these other symptoms come and go. For over a year now though I have had the CONSTANT sensation that something is stuck in the right side of my throat near my tonsil/back of the tongue and even under my jaw. I tried antibiotics, a PPI, been scoped twice, had a mucocele in that area removed and biopsied, and had a CT with contrast of my neck looking for, I presume, cancer.
None of the medications made any difference at all. The ENT doesn’t see anything concerning on the scan or in my throat and told me the last time I saw him that it is possibly a nerve issue that he just can’t see. It is maddening. While I would not necessarily describe it as painful, it is incredibly uncomfortable.
I just picked up a copy of my CT (on a CD) and was hoping that if I’m able to share the image here maybe someone with experience can let me know if this diagnosis is worth pursuing. In the meantime I have an appointment with another local ENT about a month out just trying to get a second opinion. The written interpretation of my scan that I received makes no mention of any of these structures having to do with eagles so I’m not sure if they didn’t evaluate them or if they didn’t even scan for them.
I was wondering if anyone with Eagles thinks this sounds familiar.