Hey all, been reading through some of the posts on this site and it seems to be the place to be!
I have a weird set of facts here but hopeful the knowledge and experience of people on this site can assist! I am working through this for/with my wife.
Basically have been having symptoms for 2 years now and have been going doctor to doctor. For a while we thought it was poor curve and my C1 being out of place, but in meeting with a doctor to correct that, ES was brought up. My doctor ordered a CT Scan as well as an MRV of which both came back with a normal report. My doctor does not think that is the case because you can clearly see the internal jugular vein compressing in the MRV. The CT also looks to show an elongated styloid. Our doctor called the radiologist to press him on the compression and he noted that while it does appear their is compression they are not going to re-issue the report. Nightmare!
So now anytime I reach out to a doctor or speak with someone they ask to see the scans and since the report says normal I usually get blown off. Has anyone had an experience like this? Or further has anyone ever gotten a second opinion on a CT Scan or MRV?
Having talked to my doctor and the significant research I have done I am confident it’s my Styloid, but every doctor wants to blow me off given the reports show as normal.
Any guidance or thoughts would be greatly appreciated!