Hello. I am new to the forum. I’m sharing my story and would appreciate any insight.
My story starts in February 2020 when I returned home after spending 6 difficult weeks with my ill mother. I developed fever within hours and 2 days later felt two strong electric jolts between my right neck and shoulder. About a day later I started having severe pain on the right side of my neck, shoulder, ear, above the ear to the top of the head, and upper arm (all on the right side only). I couldn’t use or lift my right arm and could barely walk or function at all for weeks due to weakness. I also couldn’t lie down due to neck pain and was basically living in a lazy chair for two months. I had x-rays and MRI and was put on steroids, muscle relaxant, and lots of Advil, (some Gabapentin) and later on Doxycycline. The MRI showed some disc protrusions but didn’t show a pinched nerve or what could explain the condition. Blood tests were all normal, except for sediment that started at 107 and slowly went down to normal over 3 months, which was also the time it took me to recover.
In March 2020 I saw an ENT doctor for the persistent ear and throat pain. He did a videoscope and ordered carotid doppler test which was fine. He diagnosed me with LPR and put me on Omeprazole and low acid diet. Incidentally, last December I was also diagnosed with stomach ulcers and was put on higher dosage of Omeprazole.
Fast forward, I’ve been doing well and exercising a lot, but the pain in the throat and ear persists. Last week I had a video visit with another ENT doctor for a second opinion and he didn’t think the pain was caused by LPR. His diagnosis is either ES or chronic tonsillitis. Reading about these two conditions, I believe to could be ES. For next step, I made an appointment with Dr. Hackman, which is scheduled for the end of May.
I have the following questions.
Could those electric jolts have been caused by ES? The MRI didn’t show a pinched nerve and I never got an explanation for the cause. I saw that the accessory nerve can be affected by ES and can explain the pain and the inability to lift my right arm.
Since I don’t have a confirmed diagnosis of ES, I’m not sure whether to wait till the end of May to see Dr. Hackman, or try to see another ENT earlier. I’m attaching some x-ray and MRI images and would appreciate any feedback.
How does a dentist identify ES? I had 3D images taken a few months ago. Can those images show the styloids?
Many thanks. This site has been super helpful.