Hello everyone! Thank you for allowing me into your group, I am so happy to be here and to maybe, finally, get some relief and answers as to my chronic jaw and neck pain!
I recently changed to a new dentist in town, and he took my first panoramic xray at the age of 29. I have been suffering with chronic pain for the past ten years and noticed something off about my xray. The tech pointed out my styloids and said “See this? Those are ligaments you aren’t supposed to see on an xray”. She didn’t really say anything more, and neither did the doctor, but it instantly made me wonder what those were.
Much research later…and here I am! I have attached my panoramic xray picture below.
A little history if anyone else can relate:
In 2009, I began to have chronic migraines, almost every other day when I began college. It was debillitating and I was put on a medication called Topomax. This medication did help a bit, but the migraines still continues less often. Later that year, I had my wisdom teeth removed. The migraines slowed down, but instead I was replaced with pain in my jaw, clicking and tightness, which was quickly pushed off as TMJ. Since then, I have been using mouthguards for constant bruxism and grinding, and the pain has spread over ten years to my entire neck, face, shoulders and upper back. My muscles are so tight that they have pulled my cervical spine out of alignment.
I have seen multiple doctors, rheumatologists, neurologists, musculoskeletal specialists, I’ve had PT multiple times, seen a chiropractor. All go back to “fibromyalgia” because they can never find the source. I’ve been dealing with constant headache and muscle pain for ten years, and I refuse to be on any heavy medications.
Since researching Eagle’s syndrome, I have realized a few symptoms I didn’t notice as well as before. I do have difficulty talking, my mouth often feels full and like I have to swallow a lot. I assumed it was because my jaw joint is tight, now I’m wondering if this is a symptom. Same with having difficulty opening my mouth, yawning, etc. It’s painful, the muscles and joints hurt to stretch.
This past March, I was in the hospital with stroke-like symptoms. I lost feeling in the right side of my face and down my arm. They put me through an MRI, CT scan and a heart test. All came back negative for stroke and they pushed it off as an optical migraine (which I had never had before). Now I see that stroke like symptoms are a possible part of Eagle’s syndrome.
Any help or advice you can all give me would be SO much appreciated. I am located in CT, it seems as though I would be travelling to Boston, MA to get treatment with a doctor many of you have had successful surgeries with, if my PCP refers me. THANK YOU ALL SO MUCH!
I uploaded the picture below of my panoramic xray. Could you take a look? Thank you all!