Hello, my name is Eric. I am starting this thread in hopes that others will be able to relate to what I’m going through. I am also hoping to talk with others for support. No one I know seems to understand what I’m going through and to be honest, I’m scared. Anyway, here is my story.
I have been having a lot of strange pains for a couple of years now. Since the start of 2019, I have been to the emergency room 5 times. Each time none of the doctors knew what to tell me. Some suggested TMJ while others suggested trigeminal neuralgia. They would give me steroids and advise me to see a dentist. When I finally got a primary doctor, he said all the same things.
Two days ago I went to the dentist. After waiting over an hour the dentist comes in. She seemed so excited to show me what she found on my X-ray. She was acting like a little child opening presents during the holidays. She showed me that I have two calcified stylohyoid ligaments. One on each side. She made comments about how rare it was and seemed really happy about it. I wasn’t amused. After I left I showed my doctor the X-ray and he confirmed it. He is referring me to an ear, nose, and throat doctor for surgery.
The pain that I am having is mostly on my right side. I have severe pain from my forehead down to my neck. I have shoulder pain, pain in my collar bone, and my right arm goes numb. The pain is so severe that I don’t know what to do. If I get too hot, my face swells. If I get too cold, the muscles in my face and jaw tense up. Either way I get shooting pains. I can only sit one way, and I have to sleep in the same position to prevent pain.To make matters worse, I’m worried that the issue is progressing. It continues to worsen by the day.
I am currently taking nerve medicine and waiting for the ear, nose, and throat doctor to call me. It would be nice to talk with others who are going through the same thing.
Thank you for reading this.