Hello! I’m so happy to have found this group. We’re investigating whether or not my husband may have Eagle’s syndrome. I’ll try to be organized. Thanks in advance for any responses!!!
First, his main symptom is pain on his head while wearing glasses, in the area right above his ears bilaterally where glasses temples touch. The pain comes within a few minutes of putting glasses on, and has become intolerable. It lasts for hours to days after glasses are removed, but eventually does go away and is not present when not wearing glasses. It started 4 years ago and has progressed somewhat. We’ve been through at least 8-10 pairs of lightweight, perfectly adjusted glasses, and his glasses have been adjusted at least 100 times. He can’t wear contacts due to other vision issues. He’s on gabapentin which used to take the edge off but is less effective as the pain progresses. As of the last few weeks, he simply can’t wear any of his glasses and is on leave from work (he’s a biostatistician in clinical research, usually on a computer). This is a stressful time for our family (I’m a stay at home mom with two small boys). I’ve searched the site and not found this exact symptom listed. We’re getting desperate for a solution.
Aside from the main symptom listed above, he also has: dizziness when he turns his head far to the right (like when reversing the car), dysfunctional eustachian tube on the right, jaw sensitive to getting bumped, slight pain deeper in the ear when pulling on right earlobe, and notably a history of a tonsillectomy that was botched, only partially completed, left him in pain for a year, and then completed a year later (around 2010-2011, done in Slovakia where his family lives, don’t get me started .
He had a CT w/o contrast last week and styloid processes are “3 cm” in the report, but actual measurements not directly stated. Ligaments are not mentioned. Our Kaiser doctors are ready to rule out Eagle based on this report.
We consider consulting with Dr. Samji even just to have him read the scans, but I’d love anyone’s intuition on our situation before we invest, since the whole thing would be out of pocket from start to finish.
- Anyone have the pain above the ear thing? Associated with glasses?
- Worth having Dr. Samji read the scans himself?
- Anyone have Eagle syndrome with ligament calcification only (assuming someone like Dr. Samji finds this in the scan) and not actual elongation of the styloid?
- Any other advice/thoughts/comments/prayers welcome