I have been suffering with many many symptoms for years. They have evolved over time, which has made diagnosis even more difficult. I think the first symptoms started a few years ago with shortness of breath, hearing and visual disturbances and cluster headaches (my eyeballs felt like they were being pushed out from within!) I also had foreign object sensation and a “tired larynx.” The headaches went away and the shortness of breath comes and goes. Recently however I have developed a whole new set of symptoms, which are impacting my ability to function normally. I have shooting and achy pains in my neck. When I move or stretch my neck in any direction it feels like it becomes restricted or something is pulling. I have said repeatedly that I feel like I’m being slowly strangled. I have shooting electric pains in my face and pain upon my first bite of food or drink (especially any form of alcohol) I have ear fullness. I suffered from SSHL sudden sensioneural hearing loss about 10 years ago.) my mouth feels swollen and irritated- almost feels like it’s shrinking or something though everyone tells me it looks normal, it feels very different. My chin also seems to significantly recede when I lie down, like something is pulling it backward. I have occasional chest pain and arm numbness as well. I know it’s difficult to figure out what symptoms are what but ES seems to account for a lot of this. A recent MRI also shows scattered ischemia.
I uploaded a picture of one side of my panoramic. The elongation looks so sharp! Is this normal? (I mean as normal as something can be with something so abnormal) it looks like a knife or dagger! The results on the left side are similar. For the experienced person looking at the image, you’ll notice there are other abnormalities in the picture, mainly… I don’t have a TMJ! I had a condylectomy 10 years ago due to a significant Jaw injury I sustained. These things have to be connected… I can’t possibly be so unlucky to have all these separate problems with my face lol. The hearing loss, condylectomy, and now ES. I am going to contact Dr Milligan today (I live in Phoenix) and see if he can see me ASAP. I only have state insurance so it should be interesting. Thank you for helping me and being with me on this insane journey!