I’ve had right sided throat pain for about 18 months, I kept telling my dr it felt like something was poking me from the inside, like a piece of glass was stuck back there or something. I was referred to an ENT who scoped me and said reflux, prescribed meds to treat. They didn’t help at all, after a few months my Dr referred me to another ENT who scoped me and also said reflux. I let him know I’d already been on reflux meds for months with no relief. He decided to send me for a CT scan, mentioning something about bony projections that may be causing my grief… to be honest I thought he was crazy!
But I went for the ct scan and sure enough it came back saying I have bilateral elongated styloid processes, left is 3.8cm, right is 3.7cm, possible diagnosis listed as “Eagle Syndrome?” My ENT referred me a neurologist, he feels medication and injections are the way to go. He said surgery is 50/50 (which I now believe to be a false statement due to his ignorance on the subject and a reluctance to do surgery himself).
I had some success with gabapentin but had to keep increasing my dosage. I had better success with pregabalin but again kept increasing my dosage as I built tolerance. He refuses to prescribe Tegretol or any other older medications due to the side effect profile. Neuro appt is booked for July (only a 7 month wait, haha, free healthcare in Canada but wait times are ridiculous). I’m feeling lost and in limbo. I feel like nobody in my area (city of a million people) is knowledgeable about this condition and I’m just being bounced from dr to dr with no real plan.
I’ve been trolling this site for awhile and decided to sign up for support. I’ve requested an appointment with Dr. Samji as he seems to be the “go to” guy for people like us. I just want relief, the burning nerve pain radiating from my throat and up to my ear is relentless and exhausting.