Hey all, new to the group. Amazing resource this forum has been for me, so I appreciate all the moderators and frequent posters taking time to contribute. So here goes…41-year old male from SW Ohio, diagnosed with ES in late March, but have been dealing with all different kinds of face/ear/headache pain every day on my right side for almost 5 years now. Then there is the ringing in the ears at night, coupled with the pain when laying on my side, my sleep has been terrible for a long time and it is taking a toll (fatigue, daytime sleepiness, stiff and popping joints, cognitive issues, etc). Over those five years, I’ve seen many specialists, had tests done, theories about what it could be, but nothing ever pointed to this condition (which isn’t that surprising considering how rare it is). Within the past couple years however, I noticed something pointy protruding the tonsil area on the right side of my throat and only recently “put 2 and 2 together” that maybe it was related to my pain. Finally saw an ENT doc that thought it might be something called Eagle’s Syndrome and after the CT Scan last month, he turned out to be right (45mm long styloid process bone on right, which is longer than the left side). I guess I’m finally relieved to know WHAT it is actually going on and that there might be a solution to this. I can say with certainty that my ENT doc is not an advocate for surgery as a treatment, as he wants to do an injection of lidocaine in the area that is protruding. However, after having spent time reading posts on this forum, I’m thinking surgery is the direction to go. My wife is less than enthusiastic of the surgery option, but she’s also seen me have 3 arthroscopic knee surgeries over the past 4 years, so I kinda understand it. Since I’m Ohio, I am attempting to reach out to Dr. Forrest at OSU Wexner, to see if he can review my case and take me on as a patient.
So since I’ve not been able to look at my CT Scan results WITH my ENT doc since the virus outbreak, I actually haven’t found the images that show the elongated styloid process bone. I do realize no one is an actual doctor on this board (I don’t think), but would anyone be willing to look at my images and find the one that shows it? I could sent a private message with a Dropbox link. Thanks again for listening.