Hey there - I’m sitting with a new diagnosis and still in shock. I am a junior in college and a figure skater, are there any other athletes on here?
Let me back up a bit, most stories are best started at the beginning. In late January/early February, I started getting consistent headaches, bouts of dizziness and occasional tinnitus. I have also had chronic sinusitis for most of my life, this may be unrelated to the ES. Initially I thought these were just symptoms of my cyst coming back (I have a 4mm by 1mm by 3mm cyst on my cerebellum that I had surgery for 3 years ago) and tried to ignore them. I was just starting a semester and scheduling would be difficult. My symptoms persisted, though, and I noticed my heart rate jumping after minimal activity. Eventually I messaged my surgeon and he ordered an MRI.
When that came back normal, I was referred to a neurologist, a cardiologist, and an ENT. The ENT started treating my sinusitis, which is difficult with my sensory issues. Cardiac testing revealed nothing out of the ordinary - everything was within “normal range”. My neuro ordered several tests, starting with an echo, followed by two separate CT scans. With each test we got closer to discovering the source of my symptoms. After the final CT we had a follow up during which she referred me to Dr. Omlie here in Minnesota. He diagnosed me with ES and said it was up to me whether I wanted to pursue surgery. His approach is external, but I didn’t know to ask how thorough he plans to be, so I will be calling to check. I’m also considering calling at least one of the Minnesota doctors listed for a second opinion.
After some research (including finding this site), I decided I wanted to pursue surgery and gave Dr. Omlie a call. My surgery is scheduled for August 19th, and to be honest I’m nervous. Not about my surgeon, but the surgery itself. My surgery is 3 weeks before school starts again, and though most of my classes are online, I am studying to be an interpreter. I’m concerned about lingering nerve pain affecting my facial expressions.
Are there any athletes on this forum? How long did it take you to get back to the sport? I’ll also be asking my doc but how long should I avoid heavy lifting? One of my jobs requires frequent lifts/transfers. I know this is long. Thank you for reading.