Back on team Eagles today. I’m the blonde in the back row second from left and today, almost 40 years later, I’ve managed to solidify the diagnosis of Eagles via CT results:
I ended up going non-contrast because it is what Dr. Samji prefers from communication with his secretary. I’ve big time jugular compression symptoms as well as glossopharyngeal, vagus and facial nerve symptoms. It would have been interesting to document the anatomic details, but then again I guess it doesn’t change much for the surgery. At 5.1 cm on right and 4.8 cm on left, these definitely need to come out!
I feel relived to finally have this diagnosis nailed down after almost 2 years of really bad symptoms (dizziness and pain) and really more than a decade of choking and coughing attacks seemingly for no reason - well there was a reason after all!
For all of you here still waiting for diagnosis, Eagles or otherwise, stick to your guns and don’t give up searching until you find the answers you need. Don’t let people get you down when they act like you’re crazy or faking it, etc. - they just haven’t walked in your shoes and they don’t know any better. It is so validating to finally find the answer and even more hopeful that treatment and relief could be a reality in the not so distant future. The struggle is real, but it’s worth it! Sometimes it seems like the universe is working against you, sometimes it feels like an endurance contest, sometimes hope seems futile and depressive thoughts seep in. Just hang in there and trust yourself. There are better days ahead - believe that!
I also keep thinking about all the poor souls that came generations ahead before Dr. Eagle’s discovery and they couldn’t get any help! How fortunate we are to be in this century and with some surgeons that have some real experience with this. Wow! Even though I’m facing my first surgery ever and it’s in the base of skull area, remarkably I feel more grateful than fearful. I expect I’ll be freaking out closer to the surgery date though.
Thanks to everyone for all of the positive thoughts and tips! This is a wonderful forum filled with wonderful people! Go team Eagles!!