I’ve been following but not commenting over the last couple of years. I had external surgery on my right styloid in Feb 2016 in Denver. I have since moved to Phoenix. I had the vascular version involving compression of my jugular vein. I’m blessed with unique anatomy and only have one jugular vein so it created a pretty horrific situation of intercranial hypertension until my diagnosis. I had several complications with the surgery resulting in nerve damage to the accessory nerve which has left me with extreme shoulder and arm pain. I had physical therapy for many months to try to regain the use of my damaged arm. (That was after I could get them to believe the surgery did indeed cause damage to the nerves) My right shoulder still rolls forward and I have a lot of difficulty using my right arm. I’m now experiencing many of the same symptoms I had prior to surgery. Unexplained high blood pressure, severe ear pain, migraines, neck pain and many more. I regret not doing more research pertaining to my doctor’s familiarity with Eagle Syndrome. I went to a very well renowned Neurovascular Surgeon, however I was his very first ES patient. I learned upon waking from surgery that he only removed about 1/2 of the styloid process and we never even discussed whether the ligaments were calcified prior to surgery. The muscles primarily on the right side of my neck are about 2-3 x’s what they used to be.I always appear to be swollen. I still battle First Bite Syndrome and have some remaining nerve damage in my face which makes me look a little bit like Elvis :). I never did go back to have the left side done.
I have an appointment scheduled for March 10th with Dr Milligan. I hope he is able to shed some light on the return/remaining symptoms. The thought of additional surgery terrifies me but this is no way to live either.
I am so happy when I read all of the success stories on here. I am hoping to one day be among ya’ll! The lesson I want to share is to please ask questions and do your homework. The time to discover you are your surgeon’s first ES patient is not when he is telling you that he was “reading up about this interesting topic” the evening before. I took the recommendation from my neurosurgeon that this doctor was the best qualified without asking enough questions. (I have had a neck and lumbar fusion as well).
I continue to learn so much from this group and this site. I am grateful for every one of you and the insight you provide.