Allow me to introduce myself. I’m Pete, a 37 year old male and I recently found out I have ES. Before I go any further I wanted to say what a wonderful community I’ve stumbled on. My Internet research of the condition and the surgery led me here and I just want to say that my heart goes out to each and every one of you. I can’t imagine how frustrating it was for those who struggled with the pain and/or getting a diagnosis. It seems that this community has really helped connect people going through similar things and helps provide emotional support as needed.
I have been dealing with pain when I swallow liquids since July 2019 and finally got in to get it checked out. My ENT did the visual scope and could only see an enlarged area on the offending side so ordered a CT. The CT showed him the telltale signs of ES. He doesn’t do the surgery so he referred me to a colleague who does and I had a consult with him on 12/16. He walked me through my CT scan and what the surgery entails and recommended the external version if I go forward. He also said he runs a verification test where he injects lidocaine into the area and if the pain subsides it’s a strong indication of ES. I “passed.” It’s a relief to know what is causing the pain but I’m now at the point where I’m contemplating the surgery.
The surgery part is the main thing that drove me to post on this site. Here’s where I’m at: I’ve found out what’s causing the pain, it is never going to get better on its own, and as I age it could get worse. (Ligaments don’t exactly get more elastic as you age, do they?) However, I feel a little embarrassed after reading some other people’s journeys as my symptoms, while painful (about a 6 out of 10), don’t impact my daily life to the extent of others. My rationale is that I’ve found out what’s wrong and the only way to get it fixed is through surgery, so I should have the surgery because the alternative is dealing with this for the rest of my life and perhaps the symptoms worsen. I’ve talked it through with my wife and she’s in agreement that it’s a good idea to have it done. I guess part of me wanted to reach out to a common group if only for reassurance that “pain is pain” for lack of a better way to put it. Thanks for reading and looking forward to the discussion.