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Eagle Syndrome - Online Support Group

Research link

Hi all

Not sure if this is allowed but thought I’d share in case anyone wants to take part.

The Department of Health and Social Care has launched a survey to identify the major challenges experienced by those living with rare diseases.

https://dhsc-mail.co.uk/form/Sx1iaZDJ/12fe439d08333dcf0e23be36/

Hope the link works!

Thanks for that, good to see they’re considering rare diseases in the UK!

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