HI All - I thought I would write a separate post telling a little about my history. I am scheduled to have surgery on Jan. 20th - a Styloidectomy on my left side. My doctor is Dr. William Omlie, a Vascular Surgeon and his nephew, James Omlie, an Oral and Maxillofacial Surgeon.
My most noticeable symptoms began nearly 4 years ago. I woke up one day unable to stand. I was extremely lightheaded. Soon, I had other symptoms too: slight pressure in my head, fatigue, & motion sickness. By the 2nd day of not being able to work. I went to my primary doctor. She was great & did every test that she could think of. I have had traditional migraines for 37 years, but this did not feel like it & my migraine medicine didn’t help. My symptoms started to progress with some weird episodes of confusion, weakness in my arms, and inability to form words The lightheadedness & slight pressure in my forehead continued. (I now think that my styloid might have been pressing on my carotid artery, at first.) I ended up going to the emergency room one day because I thought I was having a small stroke. They referred me to a wonderful neurologist at the U of Minnesota - Dr. Hyser.
He also did every test that he could think of. After everything was ruled out, I was given a diagnosis of chronic migraines. After several years & several preventative medicines, I was still having 20 migraines a month. This included my “traditional” migraines (as I called them) & my new migraines. I also was unable to do any type of movement that would cause my head to go up & down. So he finally referred me to the Headache Clinic at the U of Minnesota - Dr. Cha.
As Dr. Cha was taking my history, she saw that I also have had a chronic cough for 13 years. It was diagnosed as a neurogenic cough. She put two & two together & thought there might be something causing both my headaches & cough. She took a CTV of the neck. She called me as soon as she got the results! I had what was called Eagle Syndrome & a severe compression of my jugular veins. One side was worse than the other. My styloids were 4.5 cm & 4.4 cm.
My first referral was with Dr. Ondrey, an ENT. That didn’t go so well, so Dr. Cha referred me to Dr. Omlie for a 2nd opinion. He recommended that I have surgery, although he couldn’t guarantee all my symptoms would go away because there are so few cases out there. I immediately agreed to the surgery. I wanted my life back. Since then, my surgery has been cancelled twice because of a lack of hospital beds due to COVID. Now my surgery is scheduled for Jan. 20th. I am hopeful but a little scared, since I have been reading about everyone’s recovery. I am attaching the CTV of my neck. The notations are DR. Omlie’s.