I have been so overwhelmed with my nightmare of a situation at home that I haven’t had the time to post about my symptoms, process and oddities along the way to my first surgery, which is now in just a few days. I am, very thankfully, going to Dr. Samji, in San Jose, so I trust that I am going to the best possible surgeon. My case is complicated, as it seems most are but I am scared that my Trigeminal and Occipital Neuralgias are going to get worse before hopefully things settle down AFTER my second surgery and recovery. I had to postpone my surgery date once so I am determined to get on that plane this Friday morning.
Most recently, my vagus nerve symptoms have been triggering what my neurologist and I both believe to be Mast Cell Activation Syndrome. I am hoping that once my styloid is removed and my vagus nerve can recover, my long list of vagus nerve problems will lessen and hopefully resolve completely. I have also stopped getting my nerve blocks, as requested by Dr. Samji, so that my nerves are responsive to his nerve monitoring during surgery. That said, boy are my nerves getting pissy. I am taking every precaution possible to avoid triggers, but a cool breeze could be all it takes to set my face and head full-on into a blow torch.
I am making my packing lists and trying to get things as battened down at home as possible. My youngest sister is flying in to stay with my daughter and all of our pets and my best friend is flying to San Jose, to be with me for the week. There are extenuating circumstances that are making this trip very difficult and stressful. I am doing everything I can, within my control, to plan and prepare for the worst but expect the best.
My surgery is Monday, Dec, 9, and I am scheduled for 7:30am, which is a nice spot to have. Thank you for all of your support and advice, as I read most of your posts, when I can. I do have some good 3D pics of my styloids but I have had difficulty uploading them. I will try to add them here, but may need to do so in another post.
Thank you all so much,