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Eagle Syndrome - Online Support Group

Surgery for Eagles is usually successful!

How risky is the intraoral procedure, my ENT/Surgeon has never done the surgery but is confident and made it sound like a breeze. I have already had a tonsillectomy, and he would be doing only the left side.

I am scared of surgery, but trust this Dr.

My only symptoms for two years has been the feeling of something stuck in my throat.

BDR, there are pros and cons for both intraoral and external surgeries. People have had success with both methods. The most experienced doctors usually do external surgeries because it enables them to see everything better and to get more of the styloid out, but lots of people have been "cured" with an internal surgery. Check out the ES Information tab. You could also do a search in the Discussions.

I said this in my answer to your other discussion, but from everything I've seen and experienced, it's important to get as much of the styloid taken out as possible in the first surgery.

I had another thought - your symptom is not severe, so maybe chances would be good that an internal surgery with just a piece cut out may be all you need.

We're not doctors here, so we're only making educated guesses based on what we've seen on the forum and from our own experiences.

Well I sure hope I get cured with the extra oral surgery as in getting it done tomorrow!!! God I hope so pain is pretty intense!!! I hope it’s the styloids causing me grief or else I lost all hope

Hope your surgery went well, please update.

Praying for you Kelx!

Hi maui. If i have both ligaments calcified and also the bone protruding behind my tonsil, which surgery do i need? I would rather external but dont know what side first and would it have to be intra oral to get the bone behind my tonsil? I have alot of symptoms and pain so just wondering whats best.

Both the ligaments (calcified or not) & the styloids can be accessed either externally or internally. The external route gives the doctor a bit more flexibility as to how short the styloids can be cut & a better view of the nerves that have to be worked around, however, MANY people on this site have had intraoral surgeries with good results. Whatever approach your surgeon takes will be the one he/she is most comfortable with. Both approaches have advantages & disadvantages.

Ok thanks but can the styloid bone and the calcified ligament on the same side be taken out together? Or would that be to long of a cut. My ligaments are clacified all the way down to my hyoid bone. Sorry i know these are questions for the surgeon but this is all so mind numbing for me.

I had both ligaments & styloids removed. My surgeon made a cut in a natural crease in my neck so when it healed you can’t even see it’s there. I have one on each side of my neck.

:slight_smile:

Yes, the surgeon can remove the entire calcified ligament and styloid, but in order to do that I believe it would have to be done externally to get all the way to the scull base. In my case the styloid ligament had completely ossified, and it was pressing on my carotid artery, so for safety’s sake the surgeon did a “face lift” cut around my ear to he could get a clearer view of my arteries & vessels. This was a bit unusual, as they usually do cut at the neck… but in my case it worked out nicely. Two years later I am symptom free. I only have slight numbness in my right ear as an after effect of the surgery. I highly recommend removing the entire ligament and styloid to get best results and remove all your symptoms. I am not sure about the bone in your tonsil and how the surgeon would address that issue. All of our cases are a bit different, so your case may require a different approach. My best advice is to find an ENT surgeon skilled in skull base surgeries, not necessarily Eagles Syndrome surgery… and most importantly one you feel you can trust. I was a first for my ENT doc and he did an amazing job! I totally feel like God led me to this particular surgeon and therefore I trusted that he would take excellent care of me, and he definitely did that. I pray for your surgeries success and that all of your nasty symptoms & discomforts be removed completely! God bless!

Hello, I am in the Chicago area and am looking for a doctor. Did Dr. Patel perform your surgery externally. How did you get an appt with him? Did you have to have a referral? I am in tears as I have not been diagnosed and my doctor does not know anything about Eagles. I had a CT done, but no answers. I need to see a Dr. Who is familiar with Eagles. How did you find Dr. Patel? Please help.

Who performed and where was your surgery?

Hi @MissLiz! It looks like @Maui_Miracle hasn’t been on here for a while. Hopefully you can get a response from @heidemt

Sharon

We have a list of doctors familiar with ES in the Doctors Info Section- there’s several in the Chicago area, & contact details for Dr Patel in there. Dr Bove & Dr Cundiff are fairly experienced too I think.

I have seen the list but do I need to find a doctor first who refers me to a surgeon? I can’t even seem to find a doctor who knows about Eagle Syndrome to even get a diagnosis.

Can you call your insurance and see what they say about referrals? My insurance allows me to see any specialists, unlimited times without a referral. I called and made an appointment and that was that. They asked me if I wanted them to send my records to my primary doctor and I said sure.

I’m UK, so not sure of your system, we have to be referred by a GP / PCP- if Sewmomma’s suggestion doesn’t work I’d try seeing yours & take some info about ES with you (print out one of the research papers there’s links to in the Newbies Guide section, one which mentions symptoms like yours for example), & show it to your PCP, hopefully they’ll refer you.

MissLiz,

Maui_Miracle had her surgery in Hawaii. She had Kaiser insurance. Kaiser is an HMO so if your health insurance is Kaiser, you have to see one of their doctors. Also, people who don’t have Kaiser insurance cannot be seen by Kaiser doctors.

MissLiz,

I just sent you the updated Doctors’ List link in a post on another discussion. The doctors in your state whose names we’ve heard most often on here are Dr. Miloro, Dr. Bove & Dr. Patel. Any one of those doctors should be able to diagnose you. If you are not satisfied w/ what you learn from the first one you see, a second opinion is worthwhile. I got two opinions before having my ES surgery.

If your health insurance is a PPO you should be able to see anyone you want, but be aware that an out of network doctor will cost you more. Some insurances require a referral from your PCP but others are fine w/ you choosing to see a specialist w/o a referral. You’ll have to check w/ your insurance on that.

It’s good that you’ve already had a CT scan, however, does it thoroughly show the area between your skull base & hyoid bone? It needs to show the styloid processes & the stylohyoid ligaments as the ligaments can calcify in addition to the styloids elongating. You should also get a copy of the radiologist’s report which would have information that will let you know what the radiologist saw.

I hope this information is helpful.

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