We are glad you found our site. I’m also very glad to know that you’ve found help for your sister. ES symptoms have often been diagnosed as psychosomatic, & many of our members have been sent to psychiatrists for help with mental health. It’s very sad that more doctors don’t recognize the symptoms of compromised cranial nerves & don’t know the symptoms those upset nerves can cause.
Here is a link to posts about Dr. Heim made by a member or members who have seen him so he is known not just on Instagram. I’m sorry I didn’t take the time to re-read them all. He seems to have good reviews overall.
It is important when discussing ES surgery with a surgeon to understand the surgeon’s strategy. Here are some questions to ask:
•Will the surgery be external or intraoral (external is best)?
•How much of the styloid will be removed (to the skull base is best) & will the stylohyoid ligament be removed if it is calcified or partially calcified (Sometimes there is a gap between the end of the elongated styloid & where the calcification starts on the s-h ligament(s). It’s important that both the elongated styloid & calcified ligaments are removed for best symptoms recovery)?
•Will the stub of styloid that is left be smoothed off?
•Will the surgery be bilateral (i.e. both sides removed in one surgery) or unilateral (requires 2 surgeries for bilateral ES)?
•Is surgery outpatient or does it require an overnight hospital stay?
•Is a drain tube used to help w/ post op swelling or is Prednisone prescribed?
•How many ES surgeries has the doctor done (gives you an idea of level of experience)? More is better but an experienced skull based surgeon often operates in that area of the body so is qualified to do ES surgery.
•What is the expected recovery time? (The answer to this is based on opinion as there is no correct answer. Every person is different in how their body reacts to surgery. Some recovery quickly & others it takes more time & patience). Typically, it can take 6-12 months for the nerves that have been damaged or irritated by ES to recover.
Because ES surgery is major surgery, we recommend getting a second opinion. I don’t know how easy that is to do in your country but in the US it is a straighforward process. I’m including the list of doctors from countries outside the US as there are several doctors listed for Germany. There should be posts about each one on our forum. Using the magnifying glass icon, you can type a given doctor’s name into the search bar, & the posts that mention that doctor will come up.
I can’t answer about the hospital in Bonn but hopefully a German member will be able to tell you about it.
I hope this information helps.