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Eagle Syndrome - Online Support Group

Surgery with Dr Samji in Nov ‘19

Hi Everyone,
I’m a 35 y/o woman with ES. It is bilateral but I only have had symptoms on the right side (where the styloid is 1.1 cm longer than the left side).
I had the phone consult with Dr Samji on Tuesday and it went well. I live in SF and couldn’t make it to San Jose for the meeting but it didn’t really matter. Dr Samji was very nice and answered most of my questions. I’m trying to schedule my surgery for 11/11 but haven’t heard back from Lauren (the medical assistant). She’s not the most responsive but if I don’t hear back by Tomorrow, I’m just going to call her.
Dr Samji said he’s done more than 350 surgeries now and about 90% of symptomatic patients get relief. I’m very excited for this surgery as physical therapy, acupuncture, massages and body work haven’t worked.

Sending good vibes to all experiencing pain, anxiety and other symptoms - I hope you get a diagnosis and solution soon! It took me over 1 year of ENT, oral surgeon, orthopedist meetings, MRIs + 4 years of chronic pain but seeing the light at the end of the tunnel and really happy I didn’t give up and kept advocating for myself!

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Welcome to the group! Well done being your own advocate - is there any other way?

You sound like you have a grasp on patience and trust - crucial for recovery! Plan on binging on something good on Netflix and start planning recipes with soft foods. Maybe if you have time, you could even freeze a dish or two. I’m sure San Francisco has lots of places with good soups if not :slight_smile:

11/11 sounds like a lucky number - hope it works for that day!!! Keep us posted!!!

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That’s great news that you are on your way to getting that styloid removed! If you’ve not already read up on what to expect after surgery thete’s lots of info on here, you can use the search function. And getting stocked up with ice packs & a wedge pillow as well as soups or smoothie ingredients. Let us know when you get a definite date so we can pray for you!

Thank you! :heart: There is no other way, SewMomma! Even my very supportive husband didn’t think anything ‘serious’ was going on. I noticed you had a bad ENT experience, I did, too - the typical “open up and say 'awww” method followed by “you’re the picture of perfect health” :frowning: The Dr that diagnosed me (Dr. Bai at CPMC in San Francisco - love her!) was also willing to do the surgery but I chose Dr Samji because of his experience with these cases (over 350 vs none).
I hope you’ve found your way back to sewing.
Thanks for the well wishes.

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I have my CT scan scheduled for the 7th, moving forward to see Dr. Samaji. I agree Lauren is not very responsive, just figure she’s super busy. I live in So Cal now but raised in the bay area. I hope you are ok with the fires out there.

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Yep all that is correct and I also “fit the profile” of a tired, frazzled mom so it must all just be stress. Sigh.

Wise choice to go with the more experienced guy. I bet your local ENT will be super supportive with follow up in the future and you guys can discuss how well you’re doing!

I most definitely am sewing my kids Halloween costumes. That’s the best. And this year I plan to enjoy their candy too, lol! Last year I ate none. How sad is that?!!!

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Great news about your phone consult. I’m sorry to hear about Lauren though. Maybe she is having to deal w/ the surgery center Dr. Samji uses & they’re not getting back to her w/ a date? Who knows. It would be nice if she’d let you know what’s going on though.

I had my first ES surgery on 11/17/14 so not too long after the date you’re hoping for. I had a “blender” TG dinner that year - the whole meal in a blender w/ almond milk. It looked nasty but tasted sooo yummy!

Looking forward to hearing when you’ve got your date booked.

:blush:

So far in the South Bay Area we just have smokey skies. It may be worse in SF because that’s closer to the fires. Just depends on wind direction. We had some wind today that would rival the Santa Anas in So Cal. CRAZY!! :fire:

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Hi Linj21!
You are well on your way to recovery and I wish you all the best.

11/11 is indeed a good day - its the day my son was born (and of course Veteran’s Day) I will be sending you positive vibes for a great outcome.

I had my first surgery almost 5 months ago and though I was a bit hesitant to do the surgery for the right side, I am now ready and trying to schedule something sooner then my February date. I got through it with support from this site and ice packs. I used two ice packs in constant rotation. Other then Tylenol I didn’t need much in the way of pain meds. My surgeon did not prescribe steroids so the ice was also key to keep the swelling down.

Please keep us posted.
Peace,
BG

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Really glad that you’re feeling up to round 2! We’ll be here for you! :pray:

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Thinking of you today Linj! Happy surgery day! May it bring all the relief you are hoping for!

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