Hey all! I just discovered ES a few days ago after an extensive google search and two years of being sick of whatever’s going on with my throat.
I woke up one day 1.5 years ago (Labor Day, 2017) with what felt like a lump in my throat as well as a sore throat (both on the right side only). My voice sounded and felt different than it had in the past, and I assumed I’d had a reaction to smoke from the intense wildfires that were happening. 6 weeks later, when no improvement occurred, I went to see my first ENT after crying in my GPs office when she literally said “well, what do you want me to do about it?” He scoped me, said there was maybe a bit of swelling, and prescribed Omeprazole for reflux. I went to 6 weeks of very expensive vocal therapy with no improvement.
A few months later, I went to a different ENT who said my cords looked fine, prescribed some prednisone, and sent me on my way. Then, in August, I saw my 3rd, who also said my cords looked great. This one ordered a soft tissue neck CT which he says looks normal (Is soft tissue with contrast the right type of CT? Would he be able to see ES on it if he knew what it was?)
Additionally, in the past 2 years, I’ve developed pain in my right ear. When I press around my right ear (which I’ve started doing almost compulsively to alleviate discomfort- it does not help-) I hear a sort of whooshing sound that is not there on the other side.
Basically, I’m sick of clearing my throat all the time, not being able to sing the way I want to, not being able to talk the way I want to, and having this strange ear pain. Is ES a possibility here? Does anyone know of a doctor within driving distance of Denver that is familiar with ES and will take me seriously? I can’t stand going to another ENT who will tell me to “wait it out” or blame it on menstrual swelling (denying women’s pain and blaming it on their period is hella classy). Help please!