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Eagle Syndrome - Online Support Group

Talking hurts!

After a week of teaching my jaws are so painful and aching…kind of like a sinus infection feeling in my mouth, gums, jaws and chin. I have to talk and talking increasing the problem. Help.

You might need some kind of medication that's used for facial pain. If possible, ask a pain doctor or a neurologist. That can help get you through until you can have a surgery.

The pain meds that seem to help most are anti-seizure drugs like Neurontin & Amitriptyline as these are designed to block nerve pain. They do have some side effects though (I know Neurontin can make you sleepy; not sure about Amitriptyline).

Surgery is the best course of action though as it provides almost immediate relief of the ES symptoms. The post op recovery time is about 2 weeks to be back to somewhat normal functioning. It took about 2 months before I felt totally normal again. The healing timeline is different for each person though.

A non-drug option would be to try icing your jaw in the painful spots (wrap your ice pack in a thin towel or in a t-shirt so the ice isn't right against your skin). Ice for 10-15 min on & at least 20 min. off. If ice doesn't help, try heat. Ice will act like an external anti-inflammatory whereas heat will stimulate circulation. I would think ice would be the better choice but since our symptoms are so diverse, perhaps the conventional pain therapies won't work conventionally. Admittedly, I haven't tried either ice or heat except after surgery.

Keep us posted as to what you find helps you the most. I'll be praying you can find pain relief that is helpful!

:)

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I am going to try ice. If that does not work, then I will use the my heated rice/corn bags.

I have taken many different anti-seizure medications in the past for nerve damage in my leg and the results were terrible so I am not even going to consider those again. I use a Butran patch and hydrocodone for the severed nerve in my leg and they are helpful for my leg, but these medications don't seem to touch the pain in my jaw.

I have an appointment on April 20th and will hopefully get some answers.

Thanks for advice. I can surely use it.


Isaiah 40:31 said:

The pain meds that seem to help most are anti-seizure drugs like Neurontin & Amitriptyline as these are designed to block nerve pain. They do have some side effects though (I know Neurontin can make you sleepy; not sure about Amitriptyline).

Surgery is the best course of action though as it provides almost immediate relief of the ES symptoms. The post op recovery time is about 2 weeks to be back to somewhat normal functioning. It took about 2 months before I felt totally normal again. The healing timeline is different for each person though.

A non-drug option would be to try icing your jaw in the painful spots (wrap your ice pack in a thin towel or in a t-shirt so the ice isn't right against your skin). Ice for 10-15 min on & at least 20 min. off. If ice doesn't help, try heat. Ice will act like an external anti-inflammatory whereas heat will stimulate circulation. I would think ice would be the better choice but since our symptoms are so diverse, perhaps the conventional pain therapies won't work conventionally. Admittedly, I haven't tried either ice or heat except after surgery.

Keep us posted as to what you find helps you the most. I'll be praying you can find pain relief that is helpful!

:)

Lola,

I totally understand how you feel. I do still have one styloid left, & it runs back behind my tongue (I can feel it both in my mouth & in my throat). If I have a long conversation w/ someone, my tongue gets very fatigued, & I have a hard time speaking clearly & my jaw joint, throat & neck hurt. I have had pain in my gums & the roof of my mouth as well. Interestingly, singing is especially uncomfortable. I do sympathize. I'm having my second surgery to remove the remaining styloid on 5/11. I'm counting the minutes!

I may try my own suggestions for pain relief before too long!

:)

Thanks for the suggestions. I used the ice pack on my jaw and it was a temporary relief…only while it was actually on my face! Unfortunately, I am not going to be able to have an ice pack handy as I go through my day at school.

Talking is the most challenging and being a teacher involves lots of it so this whole ordeal is greatly impacting my job. I have not taken any sick leave, yet. I fortunately, have had a student teacher since January, and she does most of the teaching. However, her assignment ends the first of May, and my voice will be needed for 6 hours per day. I am fearful that I will not be able to fulfill my duties. I had hoped to wait until summer break for the surgery (if that is what the doctor recommends), but am not sure that I can actually hold out that long. We do not finish school until June 18th.


Isaiah 40:31 said:

Lola,

I totally understand how you feel. I do still have one styloid left, & it runs back behind my tongue (I can feel it both in my mouth & in my throat). If I have a long conversation w/ someone, my tongue gets very fatigued, & I have a hard time speaking clearly & my jaw joint, throat & neck hurt. I have had pain in my gums & the roof of my mouth as well. Interestingly, singing is especially uncomfortable. I do sympathize. I'm having my second surgery to remove the remaining styloid on 5/11. I'm counting the minutes!

I may try my own suggestions for pain relief before too long!

:)

@Isaiah_40_31 your recommendation for ice has literally given me the most relief I have had in years so thank you, thank you, thank you!

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HOORAY!! I’m so glad the ice is helping. Some people experience the opposite - ice causes pain to increase but heat helps it decrease. Ice worked best for me. Great that you’re reading these old posts. I had forgotten some of my symptoms until I read those older posts in this conversation! See how time heals even our memories (:wink:)?!

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