I can understand the frustration in working with so many specialist. Maybe this can be of some help.
We have to keep in mind that each specialty is looking at the situation from a different lens, scope of practice and even terminology. For us as the patient we can then feel like we are stuck in the “doctor wars” as you mentioned but what we don’t hear is the conversation that they have with each other. The fact that these doctors are referring to one another shows they are in fact having active conversation about a very complicated issue and are working to learn together. Also, keep in mind that all of the doctors mentioned above are nothing short of brilliant.
Dr Hepworth is the patients advocate in all of this and speaks everyone’s language (including ours), that is one of his greatest gift. So hang in there! Gather all of the information and let the dust settle. We are all in the middle of a huge medical learning curve that is vastly complicated.
Oh, and slowing down to breathe is a great thing as well
Thinking of you both in this journey