Hi all, I stumpled across this forum while looking for answers/solutions to my throat problems. What a wonderful supportive site this is and I really hope some of you may be able to point me in the right direction or have some ideas on what I might be dealing with.
Around 5 years ago I developed pain in my throat when swallowing with a general swelling over the thyroid and throat cartilage. I then developed clicking when swollowing. It wasn’t overly painful and it didn’t bother me much at first but then for a breif period it became excruciating to swallow, but it always felt as though the pain was outer throat and something to do with my throat cartilage rather than it feeling like a sore throat at the back of my mouth.
Then one day after a long sleep I woke up to what felt like a completely numb throat, as in no sensation at the back of my throat when swallowing. It was as if my throat cartilage was now jammed stuck and not able to move freely when swallowing. This was a horrible sensation and drove me crazy.
To this day around 4 years on from when my throat went numb or my cartilage stopped moving freely, I am still struggling with this issue.
With my head in certain positions my throat clunk’s/clicks as though it is clicking past something in the throat. This happens more frequently when my head is tilted forward. If my throat does not click when I swallow it feels as though there is just a contraction/clenching of the Swallow muscles but everything just clenched together rather than the usual up and down free motion of a regular swallow. Imagine clenching your first as hard as you can, it’s that kind of sensation in the throat.
I feel as though there may be thickening of the stylohyoid ligament in the right side of my neck as I can feel the ligament when I put my fingers there where as on the other side I cannot feel it.
I have had the usual camera down the throat, Neck mri, videofluoroscopy and none of them show anything that isn’t normal according to the ENT docs. The doctors at this point aren’t recommending much else. I’m debating a CT scan but is that going to show anything else that wouldn’t have been seen on my current scans?
I’m not sure if what I have specifically matches Eagle Syndrome but it sounds somewhat similar and there is definitely an issue with the throat cartilage and swallowing.
I really hope somebody has some ideas on what this could be. Is it worth me getting a CT scan or is that just dosing myself with more radiation to not find anything different than the mri or the videofluoroscopy? If so what type of CT scan is best to show ligaments as well as bone? As I know there is with and without contrast, fine cut etc. I’d rather avoid contrast if possible.
There are many other symptoms I have which I feel are in some way related. Blocked feeling and ringing in right ear. I have also developed something similar to diabetes insipidus (not sugar diabetes) which I also think led on from the throat issues but that’s another matter and to complex to go onto here.
Slightly lost as to what to do. Any advice would be greatly appreciated.